Disability Resources - Physical

Click on the links below:

ALS Association (Lou Gehrig's Disease) www.alsa.org 
National health organization dedicated to fight against amyotrphic lateral sclerosis (ALS). Promotes awareness and education.

AIDS  www.avert.org
United Kingdom organization that provides HIV and AIDS statistics, information, personal stories & information on becoming infected.

American Association of Accupuncture and Oriental Medicine www.aaaomonline.org  
Formed to be the unifying force for American accupuncturists who are committed to high ethical and educational standards, and a well regulated profession to ensure the safety of the public.

American Occupational Therapy Association www.aota.org 
Mission: The AOTA advances the quality, availability, use and support of occupational therapy through standard-setting advocacy, education and research on behalf of its members and the public.

American Physical Therapy Association www.apta.org 
Mission: The APTA will further the profession's role in the prevention, diagnosis and treatment of movement dysfunctions and the enhancement of the physical health and functional abilities of members of the public.

American Paralysis Association (Christopher Reeve Paralysis Foundation) www.apacure.com  Encourages and supports research to develop effective treatments and a cure for paralysis caused by spinal cord injury and other central nervous system disorders.

American Chiropractic Association www.acatoday.org

Purpose is to provide leadership in health care and a positive vision for the chiropractic profession and its natural approach to health and wellness.

Amputee Coalition of America www.amputee-coalition.org 
National non-profit amputee consumer educational organization representing people who have experienced amputation or are born with limb differences.

Animal Assistance: Canine Companions for Independence www.caninecompanions.org  California based non-profit that provides highly trained assistance dogs and ongoing support to ensure quality partnerships with offices across the US.

Delta Society www.deltasociety.org
National Service Dog Center: Provides advocacy on behalf of people with service animals; education & information on training to businesses, health care professionals & the public; referral to service animal training programs; and research assistance.

Cancer: American Cancer Society www.cancer.org 
National organization offers information, support, education and research for people who have cancers, survivors and the public.

Centers for Independent Living (CIL's):

Association of Programs for Rural Independent Living (APRIL) www.april-rural.org/
 National network of programs for non-profit rural CIL programs and individuals concerned with the unique aspects of rural CIL's.

Independent Living Institute www.independentliving.org
Swedish based organization whose purpose is to promote the opportunities of people with disabilities to gain more personal and political power, self determination, full participation and equality through information, training materials, consultancy and technical assistance.  The Institute works in cooperation with other organizations which support these aims at the local, national and international level, including self-help groups in developing countries.

Independent Living Research & Utilization www.ILRU.org 
National center for information, training, research, and technical assistance in Independent Living. Good comprehensive list of all CIL's.

Missouri CIL's http://mosilc.org
List of all 21 Missouri CIL's including contact information.

Missouri State IL Council http://mosilc.org 
Develops State Plan for Independent Living (SPIL) for Federal review, also holds periodic statewide meetings to Discuss CIL activity and how disability legislation affects Missouri citizens.

National Council on Independent Living www.NCIL.org 
A membership organization that advances the independent living philosophy and advocates for the human rights of, and services for, people with disabilities to further their full integration and participation in society.

Rehabilitation Act Amendments

www.accessboard.gov/sec508/guide/act.htm

Federal guidelines for Centers for Independent Living.

Cerebral Palsy: United Cerebral Palsy  www.ucp.org 
Mission is to advance the independence, productivity and full citizenship of people with CP and other disabilities.

Diabetes: American Diabetes Association www.diabetes.org 
National non-profit health organization providing diabetes research, information and advocacy.

Disability Links Barn www.accessunlimited.com/links.html 
Last update 7/2000; some information is incomplete. Primarily this is a site selling Access Unlimited products.

Disability Statistics Center dsc.ucsf.edu 
The purpose of the Disability Statistics Center is to produce and disseminate statistical information on disability and the status of people with disabilities in American Society and to establish and monitor indicators of how conditions are changing over time to meet their health, housing, economic and social needs.

Disability World  www.disabilityworld.com 
British organization whose goal is to provide the public with Europe ’s largest Accessible Accommodation Search Facility information on United Kingdom service providers.

DrugWatch.com www.drugwatch.com
The site features a comprehensive list of drugs and medications that are currently on the market, or were previously available worldwide; and isdedicated to educating the public about the details of prescription and over-the-counter medications, as well as aiding in the protection of patients and consumers by informing them of any associated side effects.

Easter Seal Society www.easter-seals.org/ 
Provides services to help children and adults with disabilities and/or special needs as well as support to their families.

Epilepsy:

Epilepsy Foundation www.efa.org 
National non-profit who's mission is to work for children and adults affected by seizures through research, education, advocacy and service.

Heart:

American Heart Association www.americanheart.org 
National voluntary health agency whose mission is to reduce disability and death from cardiovascular diseases and stroke.

Kidney:

National Kidney Foundation www.kidney.org 
This national voluntary health organization seeks to prevent kidney and urinary tract diseases, improve the health and well-being of individuals and families affected by these diseases and increase the availability of all organs for transplantation.

Independent Drivers, LLC www.drivingevaluation.com Steven Ice, MOT,OTR/L (314) 920-1842- steven@drivingevaluation.com

Klinefelter's Syndrome www.aaksis.org 
The American Association for Klinefelter Syndrome Information and Support is dedicated to enhancing the quality of life for individuals affected by Klinefelter Syndrome, 47XXY, or one of its variants.

KS Support Group Home Page www.klinefeltersyndrome.org 
Personal home page with great links.

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Lasting Impressions www.lastingimpressionsremodeling.com Home Remodeling specializing in the Tub Cut Becky Bilyeu
(314) 837-7722

Liver:

American Liver Foundation www.liverfoundation.org 
National volunteer non-profit organization dedicated to the prevention, treatment, and cure of hepatitis and other liver diseases through research, education and advocacy.

Hepatitis B www.hepb.org 
Nationally recognized non-profit organization dedicated to the cause and cure of chronic Hepatitis B.

Hepatitis C www.hep-c-alert.org 
Known for it's ability to promote public awareness and concern of Hepatitis C Virus (HCV). Most people with HCV don't know they have it (2 out of 100). Great links!

Lungs:

American Lung Association ALA) www.lungusa.org 
The oldest voluntary health organization in the U.S., ALA fights lung disease in all its forms, with special emphasis on asthma, tobacco control and environmental health.

Missouri Assistive Technology Advisory Council www.at.mo.gov

Missouri Parents Act www.ptimpact.org  
Mission is to help parents of children with disabilities become informed, effective advocates, with a special focus on education.

Multiple Sclerosis (MS):

MS Association of America www.msaa.com 
Mission is to ease the day-to-day challenges of individuals with MS and their caregivers.

MS Foundation www.msfacts.org 
Mission is to ensure the best quality of life for those coping with MS by providing comprehensive support and educational programs.

National MS Society www.nationalmssociety.org 
National health organization whose mission is to end the devastating effects of MS. Funds research. Good links.

Muscular Dystrophy Association www.mdausa.org 
Voluntary health agency with a dedicated partnership between scientists and concerned citizens aimed at conquering neuromuscular diseases. Funds research.

Myasthenia Gravis Foundation www.myasthenia.org 
Volunteer health agency that facilitates the timely diagnosis and optimal care of individuals affected by MG to improve their lives through programs of patient services, public information, medical research, professional education, advocacy, and patient care.

Narcolepsy Network, Inc www.narcolepsynetwork.org
Our members are people who have narcolepsy (sleep related disorders), their families and friends, and professionals involved in treatment, research and public education regarding narcolepsy.

National Council on Disability www.ncd.gov 
Independent federal agency making recommendations to the President and Congress on issues affecting 54 million Americans with disabilities.

National Organization on Disability www.nod.org 
Promotes the full and equal participation of America's 54 million men, women and children with disabilities in all aspects of life.

National Spinal Cord Injury Association www.spinalcord.org
Mission is to educate and empower survivors of spinal cord injuries and diseases through our toll-free helpline, nationwide chapters and support groups to achieve and maintain higher levels of independence.

Personal Injury Attorney www.personalinjuryattorney.org
Dedicated to educating the public about hiring a personal injury attorney. No bias. No ads. No attorney recommendations. Just reliable information about retaining counsel and pursuing litigation.

Post-Polio: Post-Polio Health International www.post-polio.org 
Mission is to enhance the lives of polio survivors, ventilator users, and others living with physical disabilities by promoting education, networking and advocacy. Includes International Ventilator Users Network (IVUN).

Polio Survivors Association www.polioassociation.org  
Dedicated to the task of improving the quality of life for severely disabled polio survivors.

Quad List   www.makoa.org/quadlist.htm
Provides a forum for quadriplegics (tetraplegics) to communicate with others who share the same condition.

Recreation: Recreation Council of Greater St. Louis www.recreationcouncil.org  
Non-profit that serves as a "clearinghouse" for information on leisure, recreation and socialization opportunities for individuals with developmental disabilities who reside in the greater St. Louis area.

Special School District www.ssd.k12.mo.us/ 
Since 1957, the Special School District of St. Louis County has provided Special Education Services to students with disabilities.  Also, the District operates two technical high schools providing vocational-technical education in more than 30 areas of concentration.

Disabled Sports www.dsusa.org 
Offers nationwide sports rehabilitation programs to anyone with a permanent physical disability.

Wheelchair Sports:

American Wheelchair Bowling Assoc. www.awba.org
Non-profit organization, composed of wheelchair bowlers, dedicated to encouraging, developing, and regulating wheelchair bowling and wheelchair bowling leaques.

British Wheelchair Sports Foundation www.britishwheelchairsports.org
UK National organization for wheelchair sport.  It exists to provide, promote and develop opportunities for men, women and children with disabilities to participate in recreational and competitive wheelchair sport.

DASA  (Disabled Athlete Sports Association) www.dasasports.org

National Wheelchair Basketball Assoc. www.nwba.org 
Comprosed of 181 basketball teams within 22 conferences, consisting of men's, women's, intercollegiate and youth teams throughout the U.S. and Canada.

St. Louis Wheelchair Athletic Association www.slwaa.org

St. Louis Rugby Rams (Quad Wheelchair Rugby) www.stlquadrugby.com

United States Quad Rugby Association www.quadrugby.com

Wheelchair Sports USA www.wsusa.org 
Non-profit organization directed by wheelchair athletes themselves, encouraging people with disabilities to become active in wheelchair sporting activities.

World Wheelchair Sports www.efn.org/~wwscoach/
Programs dedicated to providing recreational fitness experiences and competitive athletic opportunities to people with mobility impairments.

St. Louis Association for Retarded Citizens www.SLARC.org 
Non-profit that provides the highest quality services to help individuals with developmental disabilities (conditions or injuries which occur before age 22 and are permanent in nature) and their familie to achieve their goals.

Spina Bifida Association of America www.sbaa.org 
National organization that raises awareness of spina bifida and assists individuals who have spina bifida and families via education and services.

Spinal Cord Injury Information Network www.spinalcord.uab.edu/ 
Offers education and resources on spinal cord injury.

Spinal Cord Injury Resource Center www.spinalinjury.net/index.html 
Exhibits a vast amount of information helping to explain basic anatomy, physiology, and the complications resulting from a spinal cord injury.

Spine Health www.spine-health.com 
Goal is to provide people with a comprehensive, highly informative and useful resource for understanding, preventing, and seeking appropriate treatment for back and neck pain and related conditions.

TASH www.tash.org 
An international association of people with disabilities, their family members, other advocates, and professionals fighting for a society in which inclusion of all people in all aspects of society is the norm.

US Handcycling Federation www.ushf.org 
Non-profit corporation designed to foster and promote the development of Handcycling in both its recreational and competitive natures.

US Quad Rugby Association www.quadrugby.com 
Formed to help regulate and promote the sport (combination of wheelchair basketball and hockey) on both a national and international level.

US Electric Wheelchair Hockey Assoc. www.usewha.org 
Non-profit corporation dedicated to allowing many participants the opportunity to play electric (power) wheelchair hockey, called PowerHockey™.

United Way www.unitedway.org 
Provides funds to agencies who provide services to people with disabilities as well as others in need throughout the country.

Government Agencies:

Missouri Rehabilitation Services for the Blind www.dss.mo.gov/fsd/rsb
Provides services to people with varying degrees of visual impairment, ranging from those who cannot read regular print to those who are totally blind.

Veterans Affairs—Vocational Rehabilitation www.vba.va.gov/bln/vre/index.htm